Showing posts with label palliative-care-cancer. Show all posts
Showing posts with label palliative-care-cancer. Show all posts

Wednesday, April 8, 2009

Are you the Grandpa who was in Jail?!

Yes, our "angelic" Papa has a "criminal" past.

His walk on the "dark side" began quite early on in his life, specifically at the easily "tempted to fall" age of fourteen. Thankfully, as far as we know (according to him) his time spent at the big house was a singular event.

And so the story begins with a summer's evening, a vegetable garden, some over-ripe tomatoes, a (somewhat klutzy) woman in high heeled shoes, a back alley, a determined member of the Chicago Law Enforcement and a small group of neighborhood boys. The components of this story are, on their own, quite innocent, but put them together and as you will see, you've got yourself a recipe for disaster where the lives of four young boys are about to take a turn for the worse...time behind bars, that's right...JAIL.

According to Papa, he can't remember which one of these four boys initially came up with the idea to commit a crime that warm summer's night. However, since I know him so well, I can tell you that could only mean one thing...it was without a doubt, his idea.

And so the story goes, "way back when" in Chicago, four boys took a shortcut down a neighborhood alley one early summer evening, on their way home. On this alley, on the edge of a backyard, was a garden. Not just any old garden, think more along the lines of...the garden of good and evil, but then change the trees to tomato plants and the fresh apples to dirty, old, starting to rot, near ketchup state, well...tomatoes. Can you see it? Okay then, we can move on...

Well one of those suckers (ahem, Arend 'Odee' Lenderink) gets this fancy idea to throw the slimy things over this house and onto the main street on the other side. Maybe adds in a point thing too, like 5 points for hitting a car, 10 points for splatting a bike, I really don't know about the point part for sure though, just making that part up.

The four juvenile delinquents are having a marvelous time, raising mayhem and malarkey, really getting into the criminal side of them they were currently living out, in real life. Amidst this all, unbeknown to them, a fancy lady, wearing fancy shoes, is walking down the sidewalk. Now, high heels and slimy tomato bombs on the ground aren't the best match, well, at least in regards to safety concerns, they are none too good together. Slip, slap, down she goes, with a sprained ankle to boot.

To make a long story shorter, lady calls cops. Now, this cop is a rookie, this is one of his first assignments you see, (I'm making the rookie part up too, please forgive me) and he is 110% determined to prosecute the perpetrators responsible. And due to his determination, law enforcement was successful that warm summer's evening and the law breakers were found, on the ground, half buried in a combination of rotten tomatoes and dirt.

And despite the criminals cries of repentance along with more than a few "please don't tell my mommy!" pleas, justice is served and they are marched all three blocks over to the local jail, thrown behind bars and locked up with a key.

Now, I'm not sure if you know this or not, but Papa is the oldest. If you had ever met Grandma Zwaanstra, you would know that already, for that's all she called him, my oldest, the oldest of nine, all the time...in fact, his very siblings thought his actual name was "My oldest" up until he graduated from high school and the name Arend was read off. They looked at each other with a "huh, wha?" and a "who is Arend? I thought our brother's name was My Oldest..." Anyhow, I regress...

Funny part, I mean, not "funny" funny, just...okay, it's funny. Who is the only one able to bail these boys out of jail? The, just so happens to be, only one available, Papa's Dad, who also just so happens to be in a Council meeting at Church. And as a result is called out of it, where he is vocally and LOUDLY told that his son is in the slammer over at the local J-A-I-L.

So, what does this Conservative, Church Council Member, Father of Nine do? He goes over to the jail, rescues them from prison sentences and (laughing all the way) walks them each home. The only punishment, if you could call it that is at one point saying "well you dumdums, I bet you won't do anything that stupid again, hehe" and leaves it at that. Upon hearing this part of the story, I knew for certain that what others said really was, without a single doubt, true, my Dad is just like his Dad, to the T.

As our Papa told his grandchildren this story, their eyes became as wide as saucers, so enthralled to now know that their family has a criminal past. They even bragged about it to the other kids at school, how their Papa has been in jail before, they made it into such a marvelous story that Papa became somewhat of a celebrity at their school and was even given the title of the Grandpa who was in J-A-I-L.

So when on Grandparents day at school, when Papa and Nana arrive...well, of course you now know the reason behind the title of this story.

And as they screamed out "Are you the Grandpa who was in Jail?!"

Our Papa just beamed and proudly admitted that yes, that was he.

Saturday, January 31, 2009

Dear Physicians, Please Won't You Share?


Allow me to somewhat knowingly decipher this article below for you...

In a nutshell, not every physician is a good sharer.  Meaning that, unfortunately, some Moms slacked off and never taught the important "sharing virtue" to their children and some of those children grew up and became doctors.

Current awareness of "end of life care" including hospice, palliative care, supportive care, etc. should FOREMOST be the personal responsibility of EVERY PHYSICIAN to inform EVERY ONE of their patients of and with.  

Patients go to physicians that they trust with their VERY LIVES, thus if there is any information that may even somewhat be beneficial to any patient (regardless of the physicians own personal opinions and experiences) their physician OWES IT TO THEIR PATIENTS LIVES to clearly share these resources!

Countless people, organizations, political groups, advocates, etc. and so on STRUGGLE to come up with additional ways to get End of Life and Palliative Care information to each and every patient, exceedingly high amounts of money and resources are used and spent in order to do so.

Why are all of these efforts to spread End of Life and Palliative Care Awareness necessary to begin with?!!

It makes absolutely no sense whatsoever, relaying this information should not be difficult!  All each physician needs to do is personally and notedly hand one of those fliers/books/dvds/resources that they are constantly gifted with to their patients!  That's it!  

Do we really need to pass a law requiring physicians to "share"?


End-of-life care differs by race: study

January 30, 2009

NEW YORK (Reuters Health) - The way that older adults with advanced cancer live out their last days seems to vary based on race, a US study suggests.

But the reasons for the discrepancies remain unclear, according to the researchers, led by Dr. Alexander K. Smith of Beth Israel Deaconess Medical Center in Boston.

"Improved understanding," they write, "will hopefully lead to interventions that improve end-of-life care for all patients with advanced cancer."

SOURCE: Journal of the American Geriatrics Society, January 2009.

Tuesday, January 20, 2009

It's Hard to Live without Hope


It was Tuesday evening, January 6th, 2009

My own little girls were on a scheduled visit with their father for a few hours and I was at my parents along with my sister eating tacos, all four of us together, at their "breakfast" table.

My Dad was feeling good, he was already on his second taco, I was filming him telling some of his favorite memories and his eyes were dancing in response to the joy he had for life, for us, for the memories he was sharing, for the time we were presently having...

The "C-word" was still looming, but the hope we had discovered that day had lifted enough for us to be able to breathe again a bit...it felt so good to have even just a glimmer of hope again...we could smile now, even laugh, really enjoy each other's presence.

Ironically hope actually had been found online, frantic googling for a glimmer of it was ultimately successful!   For just hours earlier I had stumbled upon this term we'd all never heard of before called Palliative Care.  

As it turned out, platelets were NOT THE ONLY thing that could be done for my Dad!  There were other options, clearer directions, definite comfort for his pain, even potential treatments available for the man who supposedly had none.  

Palliative Care had given us some hope back that day, the mere knowledge of it alone provided such an immeasurable gift of healing to our pain laden hopeless hearts.

My Dad died five days later, but those all too brief moments of hope, I will always cherish.  

I carry them in my heart today and even now, just over a week since he moved to Heaven, they are somewhat able to soothe the intense pain of losing him.  

If I could live forever in only one moment, it was that one...the moment we found hope again...it's so hard to live without hope...

Please contact your local elected officials today and urge them to increase Palliative Care Awareness via the most effective manner possible.

If You Don't Respect Life, How Are You Able To Save It?

God created life so that it would be cherished, respected and treated with divine care.

Would you feel comfortable going to a Physician who purposely withheld VITAL resources regarding your LIFE?

If you work in the Medical Field and have a patient lying in bed, shivering from cold temperatures, would you put a blanket over them?

If you saw a small child playing alone in the middle of the street, would you move them to the sidewalk before danger approached?

If you happened across a blind man dying of thirst, would you lead him to the nearby drinking fountain?

Do you send your child out to play in the snow with bare feet?

Do you put your Grandparent ailing from Alzheimer's in charge of keeping track of all of your family's weekly activities?

Stupid Questions...Common Sense

Would a Cancer Doctor at the very least, share a folder of Hospice and Palliative Care Resources (of which, btw...are not the same thing) with her Patient during their "Medically, you've run out of options, basically you'll be dead soon" Meeting?

Stupid Question...Common Sense

Right??!!

Astoundingly, it's not...as I am sadly discovering it is not COMMON SENSE for many Cancer Doctors...how could this be??!!!

The very ones whom others trust with their VERY LIVES...not respecting it??!!!

The reality of this is terrifying for us all, because one thing we ALL will have in common is dying...


Do you Respect Life?  And if so, how could you not?

My Dad's Cancer Doctor never shared Palliative Care Resources with him at anytime...the only way we found out about it was through a lucky search on the Internet...so regarding this issue, in a sad, albeit strange way...Google was able to Respect my Father, while his Oncologist was not...

I love my Dad (Arend 'Odee' Lenderink)...and I am not okay with this having happened to him nor to anyone...

Monday, January 19, 2009

For PapAmore, Palliative Care Awareness in Honor of Odee Lenderink


In Honor of PapAmore, Arend 'Odee' Lenderink...we wish to dramatically increase the amount of quality information and valuable resources shared with and available to those potentially facing the final stage of cancer.

Although incomprehensible, some physicians do not share with their patients essential knowledge of greatly aiding end of life material.  Rather they seemingly feel it is their "God given right" to singularly destroy all hope while at the same time offering no "road map" for the horrific journey most likely ahead.

When I reflect upon the dark aimlessness my parent's were dealt by my Dad's one and only Oncologist, I am so overwhelmingly sickened.  To deal another human being a "medically no more options" hand without providing them with the necessary tools to face this nightmare is beyond cruel and inhumane.

I fervently pray that none other will have to endure this agonizing path.  I can't get my Dad back now, but I can (hopefully) work towards helping others in his name.

To simply hand a patient a folder Palliative Care Resources is such an easy yet vital act. 
 
There is NO EXCUSE for ANY Physician to omit doing so...

Please a leave a comment below for our Papa, regarding 
Odee Lenderink's Palliative Care Awareness and please do not hesitate to add any suggestions and/or questions as well...



Saturday, January 17, 2009

Please Help Make A Positive Change...For Everyone...For PapAmore...


EVERYONE should be Privy to certain Information, regardless of Internet Access and Skills, Physician Communication Ability, Current Ability to Absorb and/or Hear the Information at that moment, etc.

Is it really okay for ANYONE to tell another human being that due to lack of Medical Options that their life is over and THEN to send them out the door without sharing with them VITAL RESOURCES regarding AVAILABLE?!

Without googling Palliative Care and contacting them on our own, my Dad would not even have had a pain relief prescription, he was dying from AML without even a prescription for relief from the intense pain.

Please Help Make A Positive Change...For PapAmore...

For PapAmore...Are You Familiar With Palliative Care?


For PapAmore...Are You Familiar With Palliative Care?

I want to make a difference for my Dad...
EVERYONE should be Privy to certain Information, regardless of Internet Access and Skills, Physician Communication Ability, Current Ability to Absorb and/or Hear the Information at that moment, etc.

Is it really okay for ANYONE to tell another human being that due to lack of Medical Options that their life is over and THEN to send them out the door without sharing with them VITAL RESOURCES regarding AVAILABLE?!

Without googling Palliative Care and contacting them on our own, my Dad would not even have had a pain relief prescription, he was dying from AML without even a prescription for relief from the intense pain.

I can't change the whole world, but when I have seen my Hero tragically inflicted by the cruel, senseless lack of what should be a required (seemingly, sharing hospice and palliative care resources is currently not mandatory, or so we have been led to believe) distribution of a simple brochure entailing information...that is something easily remedied, imo...

The goal of palliative care is to prevent and relieve suffering and to ensure the best quality of life for patients with serious illness. It is offered simultaneously with all other appropriate medical treatment.



Letter sent out, Please Copy/Paste, Thank-You!

All that my Dad, Arend 'Odee' Lenderink , was told by his Oncologist was that medically he had no more options, he was was then sent on his way with no resources and never informed of Palliative Care, not verbally, not via print materials, no information shared in any form nor matter... http://papamore.blogspot.com/2009/01/for-papamoreare-you-familiar-with.html  

The only way that we found out about Palliative Care was through my extensive (and desperate) googling...thus on the internet I discovered Palliative Care, I immediately called the closest Palliative Care facility (St. Mary's Lacks Cancer Center) and they were wonderful, we literally cried tears of relief and comfort as they even set up a house visit at my parent's home the very next morning. (I discovered Palliative Care online 5 days before my Dad died from AML)

They were also the ones to bravely share that contrary to my Father's oncologist (Dr. Amy C. Vanderwoude) 2nd opinions are a good thing, a thing called clinical trials exist, Palliative Care is available, pain medication can be prescribed, introduced us to Hydrea, informed us that my "no options" Father was the healthiest AML patient that they had ever seen, that Hospice is another option, etc.  

In an attempt to put a positive spin on this, I would like to (if it is already a policy, all the better, I would so appreciate knowing either way please) somehow help however I might be able towards requiring that oncologist's share Palliative Care information and resources in written form...  

Prior to contact with Palliative Care, my Father (my entire Family) was left without ANY options...it was such a dark, scary, horrific time anyway and then to not have any resources or information shared by his oncologist with us...I feel compelled to ensure that others need not go through the additional agony of enforced ignorance as we were instructed to abide by and endured.  

More on my Precious Dad, Odee Lenderink, who died from AML on 1/11/09 http://papamore.blogspot.com

Thank You so much for your time and for all that you do...

Please Help Make A Positive Change...For PapAmore...

Friday, January 16, 2009

The world without our Papa


It's so surreal 
It makes no sense
The world without our Papa

It's so foggy
It lacks all direction
The world without our Papa

It's so overwhelming
It hurts so much
The world without our Papa

It's our worst nightmare
It frightens our souls
The world without our Papa

It's dark
It's ugly
It's senseless
It's sad

The world without our Papa

My Dad and Me



I may not be your flesh and blood
I've obviously not known you the longest
There's things about you I've never known
Our quantity of time isn't strongest

I don't want to "compete" for your love
I never really did
Your love was always endless
It never had a lid

I just want to miss you
I just want to share
The one for whom my heart sang
Whom I always knew would care

So maybe I'm not your "daughter"
Perhaps I'm "only" a "step"
But to us that never mattered
Each memory I have kept

Stored in my heart
Locked with a key
Treasured forever
My Dad and me

Waiting for "Time to Heal All Wounds"


"Papa was ALL of My Happy, 
without Him I'll Always be Sad"

A Celebration of Life for Arend "Odee" Lenderink in Denver, Colorado, 1/19/09


Arend "Odee" Lenderink

Lenderink, Arend "Odee"

age 71, of Grand Haven, died Sunday, January 11, 2009. 


A Celebration of Life will be held at 1:00 p.m. on Monday, January 19, 2009, at Third Christian Reformed Church in Denver, Colorado. 


Please visit www.klaassenfuneralhome.com to sign Odee's on-line guest book and view his full obituary.

Thursday, January 15, 2009

I Love You, Now Put THAT In Your Pipe and Smoke It!


I Love You, Now Put THAT In Your Pipe and Smoke It!

These are the words that PapAmore's 4th daughter shared with all of those gathered to celebrate him today...the last words ever spoken to her from her Dad.  

Granted, these words could have been a touch of morphine induced, however at the same time this phrase was most definitely 110% PapAmore.  

It's no wonder this GIANT of a Man was SO VERY LOVED by All...

Until We Meet Again, PapAmore


My Dad, Arend 'Odee' Lenderink, was buried today.  

We gathered today with many loved ones to honor this amazing treasure from above. 

Today we celebrated our Papa, a great man of faith, a most blessed gift that somehow we were honored to be the recipients of...oh how we will always remain in awe-like wonder of "Odee's" earthly dance with God.  

We will never forget the eternally upward direction that he steadfastly blazed a trail for our own lives to follow.

Today was his funeral...and it was beautiful...and he would have been proud.

I smiled today, amidst my tears...and my broken heart momentarily healed and dramatically swelled with such "PapAmore" pride.  

Today PapAmore was so LOVED, so APPRECIATED, so HONORED, so RESPECTED, so ADMIRED and so CHERISHED.
(Almost as much as he surely should have been each and every day of his life...amongst us mere mortals with whom he all too briefly shared this land.)

And as I longingly wished that he too could be there today, to see how much we had listened, had noticed, did believe and forever and always will love...PapAmore...I heard him whisper...he was.

Heartache for Others...Please PRAY for Dan

I (literally) randomly read this online and as a result am on my knees for these people I've never met and whom my only contact with is from a few posts on their blog.

Dan has AML and remission is currently not his, perhaps someone reading this knows of some way to help Dan, it could be...for God works in mysterious ways, let us never forget that, always hope, never stop believing and continue to ACTIVELY pray...

Posted by: unusualadventure | January 15, 2009
Last week, Dan, Erin & Tanya went to an appointment with the Fred Hutchinson Centre in Seattle where it was recommended strongly by Dr Klimo and VGH that we go for a ‘consultation’. I suppose we went down there expecting to hear of several options and ”trials” that Dan could look at. So, it was a bit of a shock to hear that they felt Dan’s 3 chemo’s not resulting in remission meant that Dan could no longer expect ordinary/standard AML treatments to work and they had nothing for him.

Initially, they told us that
Dan was now in the category of looking for a new ‘break-through’ drug - something that hasn’t been tried before…and recommended that Dan go to MD Anderson in Houston, Texas - a facility that leads the US in innovative new trials for Cancer and Leukemia. They advised Dan that he should listen to all the options there, decide who he wanted to work with - and to go for it. Basically - to take a dart and see which Trial it landed on…a little unsettling. However, the more we talked, specifically about Dan’s chromosome abnormalities and the appearing and disappearing of his “Deletion Q5″, the more they became convinced that, at least initially, they would advise VGH that Dan go on a combination course of Mylotarg, Revlimid, and one other drug…basically a more experimental program than VGH was recommending…to hopefully buy some time

It is hard not to feel a sense of urgency, despite how well Dan mostly feels and looks, as his blood counts are not as strong as they used to be….and it’s hard not to be concerned about how quickly the Leukemia is growing. However, that is precisely what Dan is trying to do – not go by tests, but go by how he feels.

Wednesday, January 14, 2009

God say Papa go bye-bye, Children and Funerals


Helpful Guidance and Support… For Parents For Teachers For All Caring Adults
My co-worker’s seven-year-old son was devastated when his grandfather died. Kyle had been very close to his grandfather, who used to give him plenty of hugs and affectionate little pats on the arm. Kyle said he wanted to go to the visitation at the funeral home. When he got there, he walked right up to the casket without hesitation and patted his grandpa on the arm, just as Grandpa had done to him so many times before.

Help for parents facing a death in their family. Reasons and examples to help them decide to involve their child in the process.

Peace4 and PapAmore


I just talked to MaggiesRose and she asked me to tell everyone .....

If you wish to do something to honor Odee, in lieu of flowers, to please donate to the Peace4 the Missing Non Profit fund. He was very proud of everything that has come together here and he would be honored to see Peace4 the Missing grow into something that will truly help the families of the missing and victims of crime.

You can send any donations to:

Peace4 the Missing
121 Lafayette Ave.
Grand Haven, MI 49417

Arend Lenderink
(June 24, 1937 - January 11, 2009) 

Please Continue Reading HERE


How to Locate Leukemia Treatment Centers, Hospitals and Oncologists

Leukemia Treatment Centers and Hospitals

There are several well-known leukemia treatment centers scattered across the United States. Some of them include:

  • Robert H. Lurie Cancer Center, Northwestern University, Chicago, IL
    Patient Information: (312) 908-5250
  • Comprehensive Cancer Center, University of Michigan, Ann Arbor, MI
    Patient Information: 1-800-865-1125
  • UAB Comprehensive Cancer Center, Birmingham, AL
    Patient Information: 1-800-UAB-0933 or (205) 975-8222
    Clinical Trial Information: (205) 934-0337 - Alma Del Grosso
  • UNC Lineberger Comprehensive Cancer Center, Chapel Hill, NC
    Patient Information: (919) 966-3036
    Clinical Trial Information: (919) 966-4432
  • M. D. Anderson Cancer Center, Houston, TX
    Patient Information: 1-800-392-1611 or (713) 792-6161 http://www.leukemia-web.org/aml-leukemia-news/leukemia-cancer-news-0129.htm
  • For a list of Cancer Doctors/ Oncologists in your area, please contact us at 1-800-923-6376 or use the form below to request information. http://www.leukemia-web.org/ask-the-doctor.htm
The American Cancer Society is happy to address almost any cancer-related topic. If you have any more questions, please call us at 1-800-ACS-2345 at any time, 24 hours a day.

Tuesday, January 13, 2009

When You Came Over to Tell Me That The Cancer Was Back


I remember every word, you're right, Papa...you truly are right here, in our hearts...
(Papa is in blue)

Now, get over here, let me give you a hug

I don't want you to tell me, Papa

I know, honey, I don't want to have to tell you either, I really thought that it was gone, I did.  Look at me, no look at me, it's going to be alright, I promise.

I know

It okay to cry, your Mom and I cried too.  But, we have to trust, God.

I will, Papa

I'm not going anywhere and I will have hope up until my very last breath, but I need to know that you and my girls will be alright

I know, we will, I promise, I will make you proud, Papa

Oh, sweetie, I know you will, you already do, every moment of every day, you already do

And, I am still here, and I am going to keep on bugging you, all the time, even IF I am not here on earth, I'm going to keep bugging you, don't you forget that

I expected that you would...and thanks, Papa...I would like that

I don't want to go yet, there is so much here yet that I want to still do.  I want to have a Bible Study yet with Rod and Lou, I want to be there for you and your girls, I want to spend more time with my best friend, I'm not ready yet to leave your Mother.  How I pray that someday you meet someone who will cherish you the way I cherish your Mom, who will treat you and my girls the way you deserve to be treated.

We already have that, Papa, we have you

You silly nut, you know what I mean

I know

If I do go, to heaven, you know what I'm going to do?

Sing really loud?

Well, yea...of course, but I'm also going to right away walk right up to Jack, your Dad and I'm going to say...thank you for sharing your little girls with me...

I love you, Daddy

I love you too, honey, I always will

(then you started in on your "short list" ~ you always took such good care of us all, PapAmore, xox times a google and more)

We Miss Him


Arend Lenderink
(June 24, 1937 - January 11, 2009) 

Happy to Share PapAmore



Heartbreaking Update from Sara Huizenga Lubbers

My thoughts go out to Sara and her family. A few days ago, through her blog Papamore and reprinted here, we got the chance to meet her father and his brave fight with AML. Today, Sara sent the heartbreaking news.

My Daddy died today

So now, I know, that I need to support my Mom and love my family, that is what he would want, to not look back with regret and bitterness

I feel like every inch of my insides have been viciously clawed away, I'm sure we all do, it's all surreal

I'm so glad my Daddy is in heaven and always in my heart



http://zerogossip.com/2009/01/11/heartbreaking-update-from-sara-huizenga-lubbers.aspx?ref=rss