Showing posts with label leukemia-alternative-treatments. Show all posts
Showing posts with label leukemia-alternative-treatments. Show all posts

Friday, January 16, 2009

A Celebration of Life for Arend "Odee" Lenderink in Denver, Colorado, 1/19/09


Arend "Odee" Lenderink

Lenderink, Arend "Odee"

age 71, of Grand Haven, died Sunday, January 11, 2009. 


A Celebration of Life will be held at 1:00 p.m. on Monday, January 19, 2009, at Third Christian Reformed Church in Denver, Colorado. 


Please visit www.klaassenfuneralhome.com to sign Odee's on-line guest book and view his full obituary.

Thursday, January 15, 2009

I Love You, Now Put THAT In Your Pipe and Smoke It!


I Love You, Now Put THAT In Your Pipe and Smoke It!

These are the words that PapAmore's 4th daughter shared with all of those gathered to celebrate him today...the last words ever spoken to her from her Dad.  

Granted, these words could have been a touch of morphine induced, however at the same time this phrase was most definitely 110% PapAmore.  

It's no wonder this GIANT of a Man was SO VERY LOVED by All...

Heartache for Others...Please PRAY for Dan

I (literally) randomly read this online and as a result am on my knees for these people I've never met and whom my only contact with is from a few posts on their blog.

Dan has AML and remission is currently not his, perhaps someone reading this knows of some way to help Dan, it could be...for God works in mysterious ways, let us never forget that, always hope, never stop believing and continue to ACTIVELY pray...

Posted by: unusualadventure | January 15, 2009
Last week, Dan, Erin & Tanya went to an appointment with the Fred Hutchinson Centre in Seattle where it was recommended strongly by Dr Klimo and VGH that we go for a ‘consultation’. I suppose we went down there expecting to hear of several options and ”trials” that Dan could look at. So, it was a bit of a shock to hear that they felt Dan’s 3 chemo’s not resulting in remission meant that Dan could no longer expect ordinary/standard AML treatments to work and they had nothing for him.

Initially, they told us that
Dan was now in the category of looking for a new ‘break-through’ drug - something that hasn’t been tried before…and recommended that Dan go to MD Anderson in Houston, Texas - a facility that leads the US in innovative new trials for Cancer and Leukemia. They advised Dan that he should listen to all the options there, decide who he wanted to work with - and to go for it. Basically - to take a dart and see which Trial it landed on…a little unsettling. However, the more we talked, specifically about Dan’s chromosome abnormalities and the appearing and disappearing of his “Deletion Q5″, the more they became convinced that, at least initially, they would advise VGH that Dan go on a combination course of Mylotarg, Revlimid, and one other drug…basically a more experimental program than VGH was recommending…to hopefully buy some time

It is hard not to feel a sense of urgency, despite how well Dan mostly feels and looks, as his blood counts are not as strong as they used to be….and it’s hard not to be concerned about how quickly the Leukemia is growing. However, that is precisely what Dan is trying to do – not go by tests, but go by how he feels.

Wednesday, January 14, 2009

Peace4 and PapAmore


I just talked to MaggiesRose and she asked me to tell everyone .....

If you wish to do something to honor Odee, in lieu of flowers, to please donate to the Peace4 the Missing Non Profit fund. He was very proud of everything that has come together here and he would be honored to see Peace4 the Missing grow into something that will truly help the families of the missing and victims of crime.

You can send any donations to:

Peace4 the Missing
121 Lafayette Ave.
Grand Haven, MI 49417

Arend Lenderink
(June 24, 1937 - January 11, 2009) 

Please Continue Reading HERE


How to Locate Leukemia Treatment Centers, Hospitals and Oncologists

Leukemia Treatment Centers and Hospitals

There are several well-known leukemia treatment centers scattered across the United States. Some of them include:

  • Robert H. Lurie Cancer Center, Northwestern University, Chicago, IL
    Patient Information: (312) 908-5250
  • Comprehensive Cancer Center, University of Michigan, Ann Arbor, MI
    Patient Information: 1-800-865-1125
  • UAB Comprehensive Cancer Center, Birmingham, AL
    Patient Information: 1-800-UAB-0933 or (205) 975-8222
    Clinical Trial Information: (205) 934-0337 - Alma Del Grosso
  • UNC Lineberger Comprehensive Cancer Center, Chapel Hill, NC
    Patient Information: (919) 966-3036
    Clinical Trial Information: (919) 966-4432
  • M. D. Anderson Cancer Center, Houston, TX
    Patient Information: 1-800-392-1611 or (713) 792-6161 http://www.leukemia-web.org/aml-leukemia-news/leukemia-cancer-news-0129.htm
  • For a list of Cancer Doctors/ Oncologists in your area, please contact us at 1-800-923-6376 or use the form below to request information. http://www.leukemia-web.org/ask-the-doctor.htm
The American Cancer Society is happy to address almost any cancer-related topic. If you have any more questions, please call us at 1-800-ACS-2345 at any time, 24 hours a day.

Tuesday, January 13, 2009

When You Came Over to Tell Me That The Cancer Was Back


I remember every word, you're right, Papa...you truly are right here, in our hearts...
(Papa is in blue)

Now, get over here, let me give you a hug

I don't want you to tell me, Papa

I know, honey, I don't want to have to tell you either, I really thought that it was gone, I did.  Look at me, no look at me, it's going to be alright, I promise.

I know

It okay to cry, your Mom and I cried too.  But, we have to trust, God.

I will, Papa

I'm not going anywhere and I will have hope up until my very last breath, but I need to know that you and my girls will be alright

I know, we will, I promise, I will make you proud, Papa

Oh, sweetie, I know you will, you already do, every moment of every day, you already do

And, I am still here, and I am going to keep on bugging you, all the time, even IF I am not here on earth, I'm going to keep bugging you, don't you forget that

I expected that you would...and thanks, Papa...I would like that

I don't want to go yet, there is so much here yet that I want to still do.  I want to have a Bible Study yet with Rod and Lou, I want to be there for you and your girls, I want to spend more time with my best friend, I'm not ready yet to leave your Mother.  How I pray that someday you meet someone who will cherish you the way I cherish your Mom, who will treat you and my girls the way you deserve to be treated.

We already have that, Papa, we have you

You silly nut, you know what I mean

I know

If I do go, to heaven, you know what I'm going to do?

Sing really loud?

Well, yea...of course, but I'm also going to right away walk right up to Jack, your Dad and I'm going to say...thank you for sharing your little girls with me...

I love you, Daddy

I love you too, honey, I always will

(then you started in on your "short list" ~ you always took such good care of us all, PapAmore, xox times a google and more)

We Miss Him


Arend Lenderink
(June 24, 1937 - January 11, 2009) 

Happy to Share PapAmore



Heartbreaking Update from Sara Huizenga Lubbers

My thoughts go out to Sara and her family. A few days ago, through her blog Papamore and reprinted here, we got the chance to meet her father and his brave fight with AML. Today, Sara sent the heartbreaking news.

My Daddy died today

So now, I know, that I need to support my Mom and love my family, that is what he would want, to not look back with regret and bitterness

I feel like every inch of my insides have been viciously clawed away, I'm sure we all do, it's all surreal

I'm so glad my Daddy is in heaven and always in my heart



http://zerogossip.com/2009/01/11/heartbreaking-update-from-sara-huizenga-lubbers.aspx?ref=rss

Sunday, January 11, 2009

THE WORD FOR TODAY.....FOREVER HEAVEN


THE WORD FOR TODAY.....FOREVER HEAVEN

Posted 5 minutes ago

AT 4:10 TODAY 1-11-09.....THE CLOUDY SKYS PARTED FOR JUST SECONDS....AND ALL OF HEAVENS REJOICED AS OUR DEAR ODEE ENTERED HIS HEAVENLY HOME ......LEAVING BEHIND A FAMILY SEARCHING FOR THE PEACE THAT PASSES UNDERSTANDING.

CONTINUE TO PRAY FOR US....

Thank You, Seppy...for this Gift





Friday, January 9, 2009

Hope, love, life

It seems like it is never often enough that we get the chance to spread the messages of hope, faith, life, or love. We're so busy living our own lives, taking for granted our own miracles and blessings that we forget that everyday there is a family struggling to face that which but for the grace of God we go.

Earlier this year I was facing serious medical concerns. All initial tests and symptoms pointed to AML (Acute Myelogenous Leukemia) and when I started the research my heart and stomach hit the floor before my knees could to pray. However, after a month of in and out testing and several doctors later- it was discovered that I have SLE (Systemic Lupus Erythematosus, just "Lupus" for short). I will admit that it hasn't been easy, and there are times I find myself struggling more with the anger and hurt of being sick more than the actual symptoms themselves. However- I have never been more humble than I am today.


At the same time that I was facing my diagnosis a friend of mine's father was getting sick. He was eventually tested, and diagnosed with AML, and has struggled through treatment and to keep one step ahead of this disease for the better part of the last year. Recently his Dr. told him that he had lost the battle and that there was nothing else they could do for him.

His doctor obviously didn't know my friend Sara (the patients daughter) or the strength, love, energy, and power that this woman carries with her in her heart. 

Maybe there is nothing else THAT Dr. could do for PapaAmore, but there is so much WE can do for him. Pray. Research. Make calls. Ask questions. Help find resources, studies, treatments. Everyone knows someone who holds the solution to another person's problems, it's all about network. And it's all about getting the word out. To each other, to God.

Do not give up. Believe. Fight. Love.

http://papamore.blogspot.com/

I invite you, no, I beg you to visit Sara's blog, the journey of her father's fight for his life, her fight for his life. So many miracles are already happening, so quickly.. already he has a new Dr., a new medicine, an invitation to the University of Chicago Lukemia center, someone who has offered to fly him.

The wheels are turning, God is listening. Be a part of something great. Even if all you can do is read, and pass the link on to someone else. If you can't help- you know someone who can, you just may not realize it.


There but for the grace of God go I..

PapAmore, Heaven Sent


THE WORD FOR TODAY...PRAYERS

Posted 1 hour ago

OUTSIDE IN GRAND HAVEN, MICHIGAN THE SNOW FALLS PEACEFULLY, BEAUTIFULLY...

INSIDE FAMILY IS GATHERED...AND WE TEARFULLY CELEBRATE A MAN'S JOURNEY OF A GOD FILLED LIFE. ODEE'S CONDITION CONTINUES TO DECLINE AS THE AML IS INVADING.

WE COVET YOUR PRAYERS FOR COMFORT, PEACE, AND RELIEF FROM PAIN...PRAYER FOR THIS MOMENT...FOR THIS DAY.

Most Recent PapAmore's CarePage Entry

The Word for Today...

Posted Jan 7, 2009 10:20am

The leukemia invades...signs are more evident... Odee is experiencing pain in legs and chest...Fatigue is more present every day. Medically...our time is shorter than what we anticipated...we still hope and pray for a miracle.

As Odee's condition continues to change...pray for all of us as we try to find the peace that passes all understanding...As we hope for more time...we continue to thank you for walking this long journey with us...we have felt your love and prayers as a soothing balm for our broken hearts.

Please continue to leave messages on the care page...as they bring such a message of peace and comfort.

PapAmore has an appointment scheduled on Wednesday with the University of Chicago, there is a plane ready to take him there, there are pills finally prescribed to stabilize his AML, my Dad sees God's very hand holding out this hope...I am confused, why hasn't this news of hope been posted about on his CarePage?


No Regrets, Only God's Plan


Whatever happens, I promise to not embrace bitterness, not dwell on what ifs, not impossibly attempt to turn back the hands of time.

I will not ever taint your name by reflecting upon it amidst futile "wish I could have" thoughts.

I know you understand that my voice now does you more harm than good.

I know that you too don't understand why they won't listen.

I know you understand that it's not because I gave up on you.

Thank you for always believing in me.

I am honored to call you my Dad.

God holds the Keys

I'm praying, fervently praying

I always have been and won't ever stop

Looking up

Just like your life

Shows us

Always