Sunday, January 4, 2009

Living with AML, any advice, please?

My Dad is 70 years old young, he looks and feels great, there's only one problem...he has AML, Leukemia, and both a try at chemo as well as mylotarg, have not put him into remission...so now? Well, thus the point of this post...

Are you or is anyone that you know familiar with AML? Do you have any contacts in this field? Have you or one of yours ever traveled a similar journey? Could you please take some time to share some tips, advice, resources that you might have learned along the way?

If you've ever read, know, heard of something, anything...please let us know, leave a comment...

Please don't hesitate to share...

Thank You

Please don't take on the role of diffusing my "fight" for my Father, this is how I must travel this journey...God understands, my Dad supports me and to be quite honest, that's really all the opinions regarding that matter.

PapAmore

6 comments:

Unknown said...

We must not place ourselves completely in the hands of health care providers but must be aware that we should be in control of our own health care and make the final decisions for ourselves so long as we are in a state to do so, or through others whom we designate to make those decisions for us if we are unable to do so ourselves. Certainly seek the advice of doctors but don’t make the mistake of thinking that the doctor knows what is best for you and accept his advice or suggestions for treatment without question.

http://www.fatima.org/news/newsviews/jsnews120308.asp

Unknown said...

Perhaps I should share a little bit more, about me...

I know death and I know how to get through it, I know what is ahead, how it feels, how it smells, what it looks like...I know it from my first Father that I lost in 7th grade, I know it from the deaths of my Grandparents, Uncles and Aunts, I know death suddenly and I know death "planned" out, I know it in young lives and I know it with those of many years, I know it from my best friend, who died when we were both 18, whose last place on earth was in the passenger seat of my car.

I know death, death does not scare scare me. Because I know what comes next...and how much that is something to look forward to, not dread.

And here and now, I know when to not give up and I won't, I will try, I will continue to spend time with my Dad, to capture these moments, to cherish each second we have, but I won't give up. All the while, I will look him in the eye and I will tell my Daddy, that I'm not giving up. As long as he has breath in him, I'm not giving up.

So, what I ask for is help in resources and advice...I don't need to know how to let go, I already know how.

Unknown said...

The Power of Prayer is REAL! And our God is THE miracle worker! We need your prayers, we cherish each and every one of them!

Unknown said...

Please join Papa's Care Page here...
http://www.carepages.com/carepages/OdeeLenderink

warshal said...

Check out www.psproof.com, this website is more than just hope, he's saved me and a number of frends.

Unknown said...

Goodmorning Maggie...Blood cell salts or Tissue Cell Salts read here http://www.naturalnews.com/024674.html
Just briefly my experience ok My boy Ben at 3 yrs was diagnosed with Aplastic Anemia presents like Luekemia but after many tests was found to be this. His red cell count was extremely low and he was said to be critical. i quickly researched and speaking with his cancer specialists was told that a blood transfusion may complicate things. A friend of ours who after the vietnam war took alot of time looking for ways to counteract the Asian Orange side effects. He got on to this Tissue cell salts lucky for my son. We loaded little Ben up with them 2 hourly I think [cant overdose] and within 2 days his count turned and started climbing. He never looked back and is a very healthy young man now. You need to find someone who knows just how much and what is the mostimportant cell salt to give for your dad that might make a difference. There are 12 of them all specific to something our blood needs. I would think a combination and I could see which might be useful. Note also we did not choose the transfusion and the specialist backed us all the way and boy was he a happy man when he saw the first result back from Ben and it was up. He wrote down everything we did and he told us that in his experience the transfusion made the child sicker. Ben was tired but sitting up and drawing been a boy lol but he was white as a sheet I could see his veins. His heart enlarged but was a good tuff heart. He was literally a few days off death and i was planning the funeral in my mind. I know it was the Cell Salts and the specialist agreed with me too it was really dramatic. A homopath a good one will know about the Tissue/blood Cell salts. hugs Sue